1999
Grants Paid During 1999
Including Payments for Grants Approved in Prior Years
AIDS Medicine & Miracles $10,000
Denver, CO
To implement a new HIV+ youth initiative that will make AIDS, Medicine & Miracles’ successful retreat more targeted and accessible to HIV+ youth. These retreats, which explore medical and complementary therapies, as well as psycho- social and spiritual opportunities for people living with HIV/AIDS, will be expanded to include a special one-day seminar at the commencement of the retreats designed for youth participants. Workshops specific to HIV+ youth dealing with issues such as sex & dating and disclosure of HIV status will be added. The goal is to empower HIV+ youth to be more active in their healthcare decisions and to be more aware of the wide range of treatment options available to them. The grant will cover the development of this seminar and related youth-targeted activities at the retreats, their implementation for two years, and the subsidized participation of 120 HIV+ youth at the retreats over two years. After the grant period, they anticipate securing other funds to continue the initiative.
(Final payment of a $40,000 grant)
Children’s Hospital Foundation $25,000
Philadelphia, PA
To improve the lives of HIV infected children by increasing adherence to medication regimens. This project will identify barriers to children taking their HIV medications and devise interventions to overcome these barriers. Interventions will include working with pain and feeding experts, nutritionists and psychologists. Social interventions will focus on educating the children’s caregivers including one-on-one instruction, the use of support groups, and the creation and distribution of a caregiver handbook. The study will identify what interventions work best in what situations. Information learned will be shared through professional associations of physicians, nurses and social workers, journal articles, meetings with other hospitals, and pharmaceutical companies. Information on the findings will also be available on the hospital’s website and the National Pediatric & Family HIV Resource Center home page.
(Second payment of a $75,000 grant)
Community Research Initiative on AIDS $30,000
New York, NY
To implement a new HIV treatment education technical assistance (TA) service that will allow the Community Research Initiative on AIDS (CRIA) to teach staffs of AIDS service organizations how to provide life saving HIV medical information to tens of thousands of people living with AIDS. The program will train over 400 staff members from AIDS service organizations on how to provide accurate information on a wide range of health care issues to their thousands of clients. Counselors, nurses, and social workers already at work in these agencies will deliver this information. There is an additional follow-up component keeping those who have been trained appraised of medical advances. The technical assistance program will start in NYC and then be replicated in at least four additional cities nationwide per year. CRIA will partner with a lead agency in each city to conduct the TA program. Through these combined efforts it is estimated up to 50,000 underserved people living with AIDS a year will be reached.
(First payment of a $50,000 grant)
International AIDS Vaccine Initiative $40,000
New York, NY
For their Internet Communications Project to speed the development of AIDS Vaccines. They plan to develop their web site to target and better serve: 1) vaccine researchers and other scientists, 2) policymakers in government, academia and industry, 3) the media and lastly, 4) the general public. IAVI will survey readers of its publication (the only one devoted exclusively to AIDS vaccine research and development) to shape the content of the web site; will enhance the site’s authoritative reporting, analysis and sharing of information; develop the site as a tool to stimulate and involve AIDS vaccine experts in sharing information and strategies; more rapidly disseminate critical scientific knowledge and news, and reach a broader audience. Features will include: bi-weekly e-mails alerting subscribers to new developments; a multi-language format since work is going on across the globe; provide universal access; and create a feedback loop and easy links to experts.
Lambda Legal Defense and Education Fund $35,000
New York, NY
Seed money to develop and advocate the adoption of policy guidelines for HIV education and prevention efforts targeted to at-risk youth {with a particular focus on lesbian, gay, bisexual and transgender (LGBT) youth} in foster care systems across the country, as a critical component of a larger Foster Care Reform Initiative being launched by the Lambda Legal Defense and Education Fund. To make foster care systems accountable for meeting the needs of this population, Lambda will develop coherent policy guidelines for care providers including standards stressing explicit, culturally-relevant prevention information linked with measures to end anti-LGBT violence and abuse in foster care settings. A multi-faceted approach, including seeking changes in accreditation requirements and other key standards, will be taken. The program will be piloted in several diverse locations and disseminated through Lambda’s four regional offices and will utilize and benefit from both their extensive network of contacts and their national reputation.
National Rural Health Association $38,000
Washington DC
To research, produce and distribute a Rural HIV/AIDS Resource Directory to improve access to and the quality of services available in rural areas for people at risk for or currently living with HIV/AIDS. Aimed at health professionals and others working and serving rural HIV/AIDS clients, the directory will pull together in one place: (1) information for successful rural HIV/AIDS services, education and prevention programs; and (2) a comprehensive listing of state and national resources, both public and private, for treatment information, funding sources and national educational materials for those in rural areas. The Directory will: centralize rural-specific HIV/AIDS information, provide information on programs that can be replicated in rural areas; and provide information on other resources that may be helpful to rural healthcare providers, social service agencies, public health departments, schools, churches and others. The Directory will be available in print and online. It will be kept updated on line for at least one year.
National Youth Advocacy Center $20,000
Washington DC
To develop a Training of the Trainers (TOT) program addressing the unique HIV prevention needs of gay, lesbian, and bisexual (GLB) youth. This project will identify the model programs and current experts addressing this high risk population, gather this experience into a training manual of creative and successful prevention strategies, and then provide training on these models and strategies on a regional basis creating a cadre of trained individuals, each of whom will then offer training and technical assistance within their own region. Using Internet technology, this growing network of trainers will be able to receive information and ongoing support. A buddy system between trainers will facilitate the continual sharing of new strategies and new networks of HIV expertise. By the end of the project period a network of at least 500 trained individuals will be in place across the country trained to provide and develop creative HIV prevention programs designed specifically to address the GLB population.
(Final payment of a $60,000 grant)
1998
Grants Paid During 1998
Including Payments for Grants Approved in Prior Years
AIDS Medicine & Miracles $30,000
Boulder, CO
To implement a new HIV+ youth initiative that will make AIDS, Medicine & Miracles’ successful retreat more targeted and accessible to HIV+ youth. These retreats, which explore medical and complementary therapies, as well as psycho-social and spiritual opportunities for people living with HIV/AIDS, will be expanded to include a special one-day seminar at the commencement of the retreats designed for youth participants. Workshops specific to HIV+ youth dealing with issues such as sex & dating and disclosure of HIV status will be added. The goal is to empower HIV+ youth to be more active in their healthcare decisions and to be more aware of the wide range of treatment options available to them.
(First payment of a $40,000 grant)
AIDS Nutrition Services Alliance $20,000
Washington DC
To help launch the AIDS Nutrition Services Alliance (ANSA), a newly created organization serving as a link among AIDS nutrition providers across the country. The purpose of ANSA is to allow nutrition programs to pool resources, share wisdom, and have a unified voice to educate and advocate for the nutritional needs of people living with AIDS. Presently 80 organizations are members of ANSA; through ANSA they will be able to share information on nutrition using the web, publications and their annual conference; provide technical assistance to make it possible for the more experienced organizations to help less experienced ones develop and replicate successful programs; educate others including government on the nutritional needs of people with AIDS, and explore the possibility of saving limited resources through group purchasing opportunities.
The Children’s Hospital Foundation $25,000
Philadelphia, PA
To improve the lives of HIV infected children by increasing adherence to medication regimens. This project will identify barriers to children taking their HIV medications and devise interventions to overcome these barriers. Interventions will include working with pain and feeding experts, nutritionists and psychologists. Social interventions will focus on educating the children’s caregivers including one-on-one instruction, the use of support groups, and the creation and distribution of a caregiver handbook. The study will identify what interventions work best in what situations. Information on the findings will be available on the hospital’s website and the National Pediatric & Family HIV Resource Center home page.
(First payment of a $75,000 grant)
Gallaudet University $5,000
Washington DC
To launch a national HIV/AIDS training program designed to prepare mental health professionals and front line workers in educating and serving the deaf community. In collaboration with the American Psychological Association Office on AIDS, Gallaudet will establish a critically needed “train-the-trainer” program in a concerted effort to improve public awareness and health care on AIDS for deaf people.
(Final payment of a $30,000 grant)
Harm Reduction Coalition $40,000
New York, NY
To disseminate harm reduction interventions (needle exchanges and user organizing projects among them) to prevent drug use-related HIV and AIDS in regions of the country where harm reduction techniques have not been well established. To increase public awareness, acceptance and support of harm reduction interventions in these regions, the Harm Reduction Coalition (HRC) will create a regional infrastructure to make these practices more widely available. Educating target audiences, training local leaders, community organizing, and ongoing technical assistance will be provided to support harm reduction strategies and policies.
Healing Works (AIDS) $20,000
New York, NY
To launch Healing Works, a wellness center devoted to providing education about, experience of, and access to complementary/ holistic care to People With AIDS (PWAs), and other underserved populations, at no cost to the patient or participating institution. Through outreach, practitioner access and the operation of the Healing Works Wellness Center, PWAs will have access to complementary care ranging from acupuncture, nutrition, psychotherapy and meditation to bereavement counseling and dance therapy. A network of professionals developed and coordinated by Healing Works will donate their services to clients and participating institutions.
(Final payment of a $50,000 grant)
Intercommunity Action, Inc. $40,000
Philadelphia, PA
To fund a demonstration project entitled “By Your Peers”, a community-based, HIV peer education program targeting persons with severe mental illness. The grant would field test in three community mental health centers in Philadelphia a peer education program, testing it to determine if training by mental health peer educators helps increase HIV knowledge and skills and learning if the materials are “user friendly” for mental health staffs in such centers. A manual to be used by staff in community based settings to institute a peer education model will be produced.
National Youth Advocacy Center $40,000
Washington DC
To develop a Training of the Trainers (TOT) program addressing the unique HIV prevention needs of gay, lesbian, and bisexual (GLB) youth. This project will identify the model programs and current experts addressing this high risk population, gather this experience into a training manual of creative and successful prevention strategies, and then provide training on these models and strategies on a regional basis creating a cadre of trained individuals, each of whom will then offer training and technical assistance within their own region. Using Internet technology, this growing network of trainers will be able to receive information and ongoing support.
(First payment of a $60,000 grant)
Phoenix House $25,000
New York, NY
To design, implement, and disseminate CHAMP, Challenging HIV/AIDS and Motivating Peers, a new HIV/AIDS peer education, prevention, and support program for drug-troubled youth in residential and day-treatment programs and other at-risk adolescent and substance abusing teens in other community-based youth programs. This structured and guided peer education and support program will be adapted from Phoenix House’s current HIV/AIDS program which is primarily aimed at adults. This program will be developed and expanded to other youth treatment and social service providers in the New York area.
Treatment Action Group $20,000
New York, NY
To help disseminate current information on HIV/AIDS research and treatment issues through the creation of an interactive web site, “TAG on the WEB”. TAG has established itself as the expert on HIV and AIDS treatment in this country. Its small, highly effective, self-trained, “consumer” staff have become recognized experts in the field of AIDS research and treatment. They provide cutting edge treatment information to policy makers, health care providers, case managers and their clients as well as providing the research and medical establishment a comprehensive and up-to-date survey of the most pressing issues facing AIDS research. With the rapidly changing nature of this field, it is critical that their information dissemination move from the printed page to the web.
1997
Grants Paid During 1997
Including Payments for Grants Approved in Prior Years
Gallaudet University $25,000
Washington DC
To launch a national HIV/AIDS training program designed to prepare mental health professionals and front line workers in educating and serving the deaf community. In collaboration with the American Psychological Association Office on AIDS, Gallaudet will establish a critically needed “train-the-trainer” program in a concerted effort to improve public awareness and health care on AIDS for deaf people.
(First installment of a $30,000 grant)
Healing Works, Inc. $30,000
New York, NY
Seed money to create a wellness center to provide education about, experience of, and access to complementary/holistic care to People with AIDS and other underserved populations at no cost to the patient or to participating institutions.
(First installment of a $50,000 grant)
Love Heals $10,000
New York, NY
To develop and deliver an AIDS prevention curriculum for middle and high schools to accompany the educational AIDS documentary on Ali Gertz,”Ali Gertz in Her Own Words”. The program will be brought to schools in New York City, Chicago and Los Angeles.
New York Peer AIDS Education Coalition $10,000
New York, NY
To support “From the Street, To the Street”, a series of training manuals to disseminate their peer-driven HIV prevention and drug education model that recruits, trains and supports NYC’s marginalized youth to provide health information, harm reduction materials, counseling, peer support and service referrals to homeless and street youth.
(Final payment of a $25,000 grant)
Rural AIDS Action Network $25,000
Minneapolis, MN
To disseminate their rural HIV/AIDS service network model, RAAN has successfully organized multi-county volunteer networks in rural Minnesota that help People Living with AIDS remain in–or return to–their own rural communities by linking them to AIDS-friendly service providers and volunteers. A how-to guide for rural HIV/AIDS community organizers will be developed and distributed nationally to help replicate the model.
1996
Grants Paid During 1996
Including Payments for Grants Approved in Prior Years
Camp Heartland, Inc. $40,000
Milwaukee, WI
A one-time grant to expand, strengthen, and support HIV/AIDS camping opportunities for children through a two prong effort: launching the “National Association of HIV/AIDS Camps” and establishing “Camp Heartland Shares”, a program to replicate the Camp Heartland camping model for children impacted with HIV/AIDS.
Cancer Care, Inc. $15,000
New York, NY
For the AIDS Pain Relief project to bring to the AIDS community the knowledge, experience, and programs that have been successfully developed to improve pain management for cancer patients.
Gay Men’s Health Crisis, Inc. $20,000
New York, NY
Seed money for Gay Men’s Health Crisis’ Community Partnership Initiative to support the development and viability of AIDS-related services in underserved communities in New York City through the provision of training, technical support and program development to community and neighborhood-based organizations.
God’s Love We Deliver, Inc. $30,000
New York, NY
To support the Nutrition Education Publications Program and specifically the development, printing, and dissemination of Nutritional Healing: Eating Tips for Pregnant Women, Infants and Children with HIV Disease.
New York Community Trust (The) $10,000
(New York City AIDS Fund)
New York, NY
To support the New York City AIDS Fund, the five year old coordinated effort to raise and pool philanthropic dollars, develop leadership and inform the philanthropic community in New York City about the AIDS epidemic.
(Final payment of a $30,000 grant.)
New York Peer AIDS
Education Coalition, Inc. $15,000
New York, NY
To support “From the Street To the Street”, a series of training manuals to disseminate their peer-driven HIV prevention and drug education model that recruits, trains and supports NYC’s marginalized youth to provide health information, harm reduction materials, counseling, peer support and service referrals to homeless and street youth.
(First installment of a $25,000 grant.)
Spectrum Youth and Family Services $20,000
Burlington, VT
To document, evaluate, replicate and disseminate its Peer Outreach Worker program which hires and trains youth to do one-to-one street outreach to youth in “at risk” situations, specifically focusing on HIV/AIDS education and prevention in a small city and rural setting. Through a publication, workshops and ongoing technical help, this model will be made available to other communities across the country.
University of Pittsburgh $20,000
Graduate School of Public Health
Pittsburgh, PA
To create and support the pilot operation of an Internet home-page site providing accurate, up-to-the minute information on HIV prevention. Using a database of primary and secondary prevention resources, a “chat line”, and a library of material, the site will allow users easy access with a high level of privacy. The prevention resource database will focus on Pennsylvania and be expanded.
1995
Grants Paid During 1995
Including Payments for Grants Approved in Prior Years
AIDS Action Foundation $25000
Washington DC
A one-time grant for a policy document to integrate mental health perspectives into national AIDS prevention policy and community-based prevention practices with special attention focused on three groups at very high risk of HIV infection: disempowered women, young gay men, and communities of color.
Balm in Gilead, Inc. $20,000
New York, NY
For the initial development and implementation of The Black Church National HIV/AIDS Resource/Clearinghouse Center which will: (1) develop culturally relevant HIV/AIDS educational information appropriate for religious and community settings; (2) provide technical a assistance to religious groups and community organizations in HIV/AIDS program planning, development and evaluation; (3) disseminate HIV/AIDS information and educational materials and referrals.
(Final payment of a $40,000 grant.)
Fund for the City of New York $25,000
The Orphan Project
New York, NY
For the preparation and distribution of the report “Orphanages Revisited: Congregate Care and Alternatives for Orphans and the HIV/AIDS Epidemic” analyzing in a historical context, if, under what conditions and with what services, “orphanages” or other congregate child care settings are appropriate options for children whose parents have died of HIV/AIDS and for other categories of children without caregiving parents.
Iris House $25,000
New York, NY
To analyze, evaluate and document for replication the creation and performance of Iris house, the nation’s first community-based organization devoted solely to the needs of HIV/AIDS women and their families.
(Final payment of a $50,000 grant.)
New York Community Trust (The) $20,000
(New York City AIDS Fund)
New York, NY
To support the New York City AIDS Fund, the five year old coordinated effort to raise and pool philanthropic dollars, develop leadership and inform the philanthropic community in New York City about the AIDS epidemic. The funding priorities of the Fund in 1995 are prevention, advocacy, and organizational capacity building.
(Second payment of three-year $50,000 grant.)
Thirteen-WNET $20,000
New York, NY
One-time grant for the national public television documentary film:
SEX and Other Matters of Life and Death profiling STAR (Sinai Teen Arts Resources) a unique theater company of teens fighting AIDS, sexually transmitted diseases, and teen pregnancy through a blend of comprehensive sexuality education and peer counseling and theater as part of the HIV/AIDS Prevention and Treatment Program at Mount Sinai Hospital’s Adolescent Health Center in New York.